Evelyn and her PedsCare nurse Jeanne.

Evelyn is having subtle little seizures. She may have had them for sometime they are just so slight that they were not noticeable for a while.

I am a turtle.

Trying on Halloween outfit.

Day 174 or 5 months 3 weeks update

• 15,033,600 seconds
• 250,560 minutes
• 4,176 hours
• 24 weeks

Hi.
Evelyn continues to grow and follow the growth curve. She is getting quite heavy to hold. People comment that she is small or they expect her to be bigger, but it is just because her head is small.

Developmentally she has not advanced past a newborn. She eats and sleep. We have been told she is blind but when you get close she knows you are there, that may be that she can see shadows or simply that she can feel your warmth or smell you or feel your breath. She does not socially interact. She will coo and if you tickle behind her shoulder blade some days you can get her to smile.

It is wonderful how her lack of development changes nothing. People are very sensitive and kind. She is a joy to have and a nice addition to our family.

Recent

Timothy and Evelyn

Asleep on the table!

Tickle, tickle.

Smiles!

Enjoying Timothy.

Day 152: Doctors' visit.

We had our second visit with the geneticist on Thursday.
Evelyn continues to grow. She is longer and heavier. Just about 14 pounds.
At some point something will trigger her decline but they do not know when that will be or how so meanwhile we continue to enjoy her presence in our family.