Thanks.

Dear Friends and Family,

Thank you for all of your love and support of our family and especially of Evelyn over the past year.

Knowing how many people checked Evelyn's website as part of their life's routine always brought great comfort.

This site will remain as is. I redirect you to our family webpage where I will start posting new photos today and adding to the archive.

Thanks again for all of your support. Please continue to remember my little girl, Evelyn Adele.

Love,
Brian, Elizabeth, Timothy and Julian

Click here for the Bowes' main family site

http://boweses.blogspot.com/

Day 341

Evelyn Adele died peacefully at home in my arms this morning at 2:30am with Elizabeth by my side.

She will be greatly missed but ultimately were are joyous for her.

Thanks to absolutely everyone for your thoughts, concerns and prayers over these 11 months.

Love, Brian, Elizabeth, Timothy and Julian
bnbowesmd@pol.net

A letter from Timothy

2:30am
March 1oth

Dear Evelyn,
I hope you have a good time in heaven. I always wanted you to live as long as you could. I want you to be my guardian angel. I love you so much.
Timothy

Funeral arrangements

Visitation (closed casket) will be on Sunday from 2-4pm at Jacksonville Memorial Gardens Funeral Home, 111 Blanding Blvd (by Orange Park Mall).

Mass of Christian Burial will be 10:30am Tuesday at St. Catherine Catholic Church, 1649 Kingsley Avenue, Orange Park.

Please join us.

In lieu of flowers, we are accepting donations to Community Hospice Foundation to support Community PedsCare.

2640 Country Club Blvd.
Orange Park, Fl 32073

Evelyn

Please continue to keep our little Evelyn in your prayers.

A slow decline

Evelyn is having more seizures now.
She can only take a small amounts of liquid without choking.

She is still as sweet as ever.
PedsCare continues to be wonderful to our family.

Thanks for checking in and for all your thoughts and prayers.

Wonderful garment made in Alaska!

  

11 months

It has been a while since I left a status report.

Evelyn is the same little girl, now skinnier.

Medical update: She has always had difficultly eating.
Last month I intended to post an update as her weight dipped to 12 lbs 9 oz.
She had previously been 14+ lbs. Today her weight is down to 11 lbs 12 oz.
We have discovered that she likes vanilla custard, so maybe we can fatten her up a bit with that!

We are all in good spirits. The boys are doing great. Elizabeth is very
well and very busy teaching and taking classes about childbirth.

Thanks for checking in.

334 days or
* 28,857,600 seconds
* 480,960 minutes
* 8,016 hours
* 47 weeks

Sweet Evelyn!

  

Evelyn Adele's Valentine's lollipop!

  

TEETH!!!

Grandma Dugan came today for two weeks to help out.
Elizabeth starts her annual Navy training, so she will be going to work for the next two weeks.

Evelyn broke her first tooth through today, just to show off for Grandma!

Evelyn with her Great Grandmother

Day #302

Or 9 months, 27 days
* 7,248 hours
* 43 weeks

Well here we are... 302 days. Who would have known. The reality struck Elizabeth and I when we looked at each other during the New Year. 2005 was the year of Evelyn and here she is still with us in 2006!

Things are largely unchanged. She is still an infant. Sleeps a lot. Makes little noise. Doesn't really cry. Doesn't roll over et cetera.

The last 2 months there does seem to be some awareness of her family. She fusses if we aren't with her which means she gets her way (of course) and is in bed with us lately. We can also get her to react to verbal stimulation and she will smile a bit.

She eats a good amount somedays and hunger strikes the next. Lately she has been having fevers but who knows if that is teething or an infection.

So it is still one day at a time. Most days just repeat themselves, but that is fine. We are in good spirits and thoroughly enjoy our little family.

Thanks to everyone near and far for their support, concerns, prayers, car pools, phone calls .....

Brian & Elizabeth

Our email address click here.

My Navy Cheerleader outfit

 

 

With Uncle Chris

 

Evelyn at her friend Lydia's first birthday party!

 

Playing with Mommy

 

 

 

My first Christmas Eve.

 

Merry Christmas from the Bowes Kids!

"Mommy I can't believe it
she is going to make it to
Christmas....
her first Christmas!"

-Timothy

Evelyn and Jeanne

Evelyn with her Hospice
Nurse Jeanne! 

Elizabeth, Evelyn and Timothy during the Navy-Army Games

 

Evelyn watching football with Daddy

 

246 days

Or 8 months, 2 days

• 21,254,400 seconds
• 354,240 minutes
• 5,904 hours
• 35 weeks (rounded down)

PedsCare

Our family has really benefitted from the Community Hospice. Think about getting involved in Jacksonville or in your neck of the woods.

Get informed
https://www136.ssldomain.com/communityhospice/getinformed/index.htm

Get involved
https://www136.ssldomain.com/communityhospice/getinvolved/index.htm

Happy Thanksgiving!

 

Red Fridays

Evelyn

Mommy and Me.

 

Looking cool!

Evelyn at Disney World.

Kids with Halloween loot.

Update day 215, 7 months 1 day.

Hi!
We recently had wonderful visits from Granddad Bowes, GreatGranddad Hohmann and Grandma Dugan.

Evelyn is as sweet as ever. She eats, sleep and continues to grow.
The boys continue to dote on her.

The spot on her head is looking worse. It is getting big as she is getting bigger. Do not know if this means anything. Just reminds us we are on borrowed time.

As Hospice say, "each day is a blessing".

That's, the update. Thanks for checking in. Keep us in your prayers.

Evelyn and Great Granddad enjoying Saturday brunch.

Evelyn and Great Granddad

Evelyn enjoying her first and favorite solid food... pears!

For the latest family photos check....

Brian's family web site

Steve's family web site

Here are the boys with their sister at Doors N More.

Here is Evelyn with Belle and Donna her social worker at the Doors N More PedsCare charity fundraiser tonight! Fun was had by all!

Wide Eyes!

Evelyn's TV debut

News 4 Jacksonville interviewed us yesterday at Hospice of Jacksonville to help promote PedsCare. Evelyn's story was shown on the 10pm and 5am news. They did a nice job.

Links to Hospice of Jacksonville:
Donations
Volunteer
Get Involved

Evelyn and her PedsCare nurse Jeanne.

Evelyn is having subtle little seizures. She may have had them for sometime they are just so slight that they were not noticeable for a while.

I am a turtle.

Trying on Halloween outfit.

Day 174 or 5 months 3 weeks update

• 15,033,600 seconds
• 250,560 minutes
• 4,176 hours
• 24 weeks

Hi.
Evelyn continues to grow and follow the growth curve. She is getting quite heavy to hold. People comment that she is small or they expect her to be bigger, but it is just because her head is small.

Developmentally she has not advanced past a newborn. She eats and sleep. We have been told she is blind but when you get close she knows you are there, that may be that she can see shadows or simply that she can feel your warmth or smell you or feel your breath. She does not socially interact. She will coo and if you tickle behind her shoulder blade some days you can get her to smile.

It is wonderful how her lack of development changes nothing. People are very sensitive and kind. She is a joy to have and a nice addition to our family.

Recent