Playing with Mommy

 

 

 

My first Christmas Eve.

 

Merry Christmas from the Bowes Kids!

"Mommy I can't believe it
she is going to make it to
Christmas....
her first Christmas!"

-Timothy

Evelyn and Jeanne

Evelyn with her Hospice
Nurse Jeanne! 

Elizabeth, Evelyn and Timothy during the Navy-Army Games

 

Evelyn watching football with Daddy

 

246 days

Or 8 months, 2 days

• 21,254,400 seconds
• 354,240 minutes
• 5,904 hours
• 35 weeks (rounded down)

PedsCare

Our family has really benefitted from the Community Hospice. Think about getting involved in Jacksonville or in your neck of the woods.

Get informed
https://www136.ssldomain.com/communityhospice/getinformed/index.htm

Get involved
https://www136.ssldomain.com/communityhospice/getinvolved/index.htm

Happy Thanksgiving!

 

Red Fridays

Evelyn

Mommy and Me.

 

Looking cool!

Evelyn at Disney World.

Kids with Halloween loot.

Update day 215, 7 months 1 day.

Hi!
We recently had wonderful visits from Granddad Bowes, GreatGranddad Hohmann and Grandma Dugan.

Evelyn is as sweet as ever. She eats, sleep and continues to grow.
The boys continue to dote on her.

The spot on her head is looking worse. It is getting big as she is getting bigger. Do not know if this means anything. Just reminds us we are on borrowed time.

As Hospice say, "each day is a blessing".

That's, the update. Thanks for checking in. Keep us in your prayers.

Evelyn and Great Granddad enjoying Saturday brunch.

Evelyn and Great Granddad

Evelyn enjoying her first and favorite solid food... pears!

For the latest family photos check....

Brian's family web site

Steve's family web site

Here are the boys with their sister at Doors N More.

Here is Evelyn with Belle and Donna her social worker at the Doors N More PedsCare charity fundraiser tonight! Fun was had by all!

Wide Eyes!

Evelyn's TV debut

News 4 Jacksonville interviewed us yesterday at Hospice of Jacksonville to help promote PedsCare. Evelyn's story was shown on the 10pm and 5am news. They did a nice job.

Links to Hospice of Jacksonville:
Donations
Volunteer
Get Involved

Evelyn and her PedsCare nurse Jeanne.

Evelyn is having subtle little seizures. She may have had them for sometime they are just so slight that they were not noticeable for a while.

I am a turtle.

Trying on Halloween outfit.

Day 174 or 5 months 3 weeks update

• 15,033,600 seconds
• 250,560 minutes
• 4,176 hours
• 24 weeks

Hi.
Evelyn continues to grow and follow the growth curve. She is getting quite heavy to hold. People comment that she is small or they expect her to be bigger, but it is just because her head is small.

Developmentally she has not advanced past a newborn. She eats and sleep. We have been told she is blind but when you get close she knows you are there, that may be that she can see shadows or simply that she can feel your warmth or smell you or feel your breath. She does not socially interact. She will coo and if you tickle behind her shoulder blade some days you can get her to smile.

It is wonderful how her lack of development changes nothing. People are very sensitive and kind. She is a joy to have and a nice addition to our family.

Recent

Timothy and Evelyn

Asleep on the table!

Tickle, tickle.

Smiles!

Enjoying Timothy.

Day 152: Doctors' visit.

We had our second visit with the geneticist on Thursday.
Evelyn continues to grow. She is longer and heavier. Just about 14 pounds.
At some point something will trigger her decline but they do not know when that will be or how so meanwhile we continue to enjoy her presence in our family.

Bath time with Jeanne!

Family Beach photo

Us at the beach.

Older photo, but still cute.

Getting her feet wet.

With Mommy.

With Mommy and Daddy.

Evelyn and her brothers.

Eyes wide open. 19 weeks.

Snack time.

Movie

Click here for Evelyn at the beach!

Playing with her stuffed animal.

Day 115

Life is settling down now as the St. Augustine beach vacation is over. The Bowes family is very grateful to Elizabeth's parents for allowing us all to have fun at the beach and share our time together.

Baby Evelyn is back in her normal surroundings. Surrounded by her brothers, their kisses and silly faces.

Evelyn has grown quite big in the past four months. It is wonderful to see. She has a dimple on the left cheek and if you kiss it just right it shows. She is still wonderfully easy to care for and a pleasure, although she is getting more difficult to feed.

Our PedsCare nurse continues to be a treasure and we are wonderfully thankful for their support and the terrific healthcare the Navy provides for us.

Thanks for checking up on Evelyn and our family!

Evelyn

Sleeping at the beach